It’s a community meeting with everyone touched by hoarding. So it included EMT’s and other emergency personnel, code enforcement, public health, adult protective services, animal control, and of course individuals who deal with hoarding disorder. I was surprised that a crime scene cleaner was there, because they also do clutter clearing, as well as several people who identified as organizers, which I understand to mean folks who organize someone’s stuff.
I found out about a workbook called Buried in Treasures. I understand you should get the 2nd edition because it includes new diagnosing guidelines from DSM 5. (DSM 5, or Diagnostic and Statistical Manual version 5, is the handbook for diagnosing mental health issues in the US. I don’t know if the ICD or International Classification of Diseases manual put out by the World Health Organization, known as WHO, includes mental health diagnoses.) If you are interested in the topic, you want the most up to date information. One of the host organizations offered free copies of the book to the group, so I signed up for it.
The presentation was about long term care and hoarding. The idea is, people usually enter the system for other mental health reasons but the hoarding gets included along the way.
So, using me for an example, though I don’t claim to be a hoarder. I am bipolar. When I am manic, I shop and I am disorganized. When I am depressed, I don’t clean. That leaves a very small window for dealing with my accumulated possessions, which I often find overwhelming. I could easily enter the system by being bipolar. I could have needs that I can’t meet myself, that can be supported by community agencies. In dealing with the shopping and disorganization, I would also have to face any hoarding tendencies. Though in reality I may fall into the category, based on guidelines in the DSM. But I would need to examine that more. So I might get long term care as a bipolar person, and it might include a certain amount of housekeeping since I am apparently bad at it. And in dealing with the housekeeping issues, we would have to deal with hoarding.
Now there was one very vocal lady there, who pretty much insisted that non-hoarders don’t understand. She is probably correct. She wanted speakers who were certified for working with hoarders, for example, not simply people who had experience with hoarding. She also endorsed the book, which the hoarding support group is working through. She passed around her copy, a hard-used book with underlines and highlights. I know because I flipped through it, looking for a section she hadn’t used that I could look at without invading her privacy. I couldn’t find one.
So now I have a new area of mental health to explore.